I don't usually write about my Turner's Syndrome, but this story reminded me of when I was first diagnosed at age 13. I felt like a freak. Hated being a "syndrome". And the book my parents were given seemed so condescending.
A brief reminder, TS is a chromosomal defect that affects some 1/2000 LIVE births. Only girls get TS. Those girls that become live births can have a multitude of "problems" ranging from infertility to heart and kidney problems. Often learning can be difficult for TS girls.
The book my parents were given was called "Good Things Come In Small Packages". What bothered me about that book was the FAQ section. It had questions like:
- Are TS girls retarded?
- Are they promiscuous?